Sunday, August 2, 2015

ACA Database: The High Price of Specialty Drugs Is (Literally) Killing Me

flying cadeuciiJoyce J wrote in with this to say after reading Steve Findlay’s post on Medicare’s 50th Anniversary last week.

“Just yesterday, I was on my last and final rant relative to the price of not only specialty drugs, but also Tier 3 drugs! So much of a rant that I considered writing my Congressman Tim Murphy. After much thought, I decided to suck it up, pay the price and let my congressman work on bigger issues.(before reading your article today!)

I realize that I am not he only pathetic one that this drug price debacle affects, but for some reason, as a hard worker my entire life (in, none other than the healthcare profession), an upstanding, tax paying, law abiding citizen, somehow I feel I am being raped by the system.

I am 66 years old. I am a widow for 20 years. I am on Medicare part A and part B.(?$104/month) My secondary insurance is Highmark PPO Blue. ($605.89/month). After retirement, I maintained my husband’s health insurance as my supplement because of 1 tier 3 drug that I currently use. Due to Multiple Sclerosis, Lupus, breast cancer (none of which I chose to have) I could essentially be using multiple specialty drugs. I’ve declined all, except for the one Tier 3 drug, brand name, Provigil.

It has been a miracle drug for me relative to severe fatigue and loss of concentration and overall, daily function.”


My basic complaint I guess is, up until October 2014, I was paying a $60 dollar copayment/month. November 2014 Highmark cut the prescription coverage in half allowing me a 15 day supply, thus increasing the copayment to $120/month

I suppose being and upstanding citizen, hard worker doesn’t account for much these days. You see, in retrospect I rightfully could have chosen disability at age 27, but didn’t. Continued to work till age 65, continued paying into Medicare and social security, only to be treated like the drugstore pharmacist has to pay for my pill out their own pocket.

My best regards,

Joyce.J.

P.S. Two weeks ago, I’m in the throes of an MS exacerbation. My neurologist attempted to prescribe Acthar Gel injections, to slow the progression, upon approval by Highmark.DENIED!

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